Telling A good Story

Brothers. And sisters ( +inlaws) before the trache

Working in palliative care, I understand all too well the power of the diversion story, something that deflects the attention from death, dying, symptoms and sadness

This post from fifteen years ago is a case in point

“ My brother was tired when I visited him this evening. He was also rather weary and fed up with the tracheostomy which is to be expected.

Unable to speak , interaction can be a little difficult for him and for us, and when visiting , being in the hospital. I was reminded of when I used to take my mother out from her nursing home room, and I was glad that the story I recalled got my brother, sister in law and visiting nephew Peter smiling.

My mother in the months before her death was a terribly difficult character. A chronic bronchitic and un diagnosed COPD sufferer she was confined to her room on an oxygen concentrator which she found dreadfully frustrating seeing that she was a 60 cigarette a day lady!). To take her out, she needed bottled oxygen, so on my weekly visit from Sheffield ( a 200 mile round trip) I used to "borrow" one of the huge oxygen cylinders from work! which I used to smuggle out of the spinal unit ( by using one of the patient's wheelchairs as a trolley and a big woollen blanket!)

When I finally reached Prestatyn, I would have to toilet my mother (not the most pleasant of jobs) , then trundle her down into The Prof’s nissan micra for her weekly afternoon out!

 I had learnt early on that she would have to be sat on a selection of incontinence pads ( or if these ran short some subtly sculptured plastic carrier bags overlapped to catch the drips) and after getting her sitting comfortably and connected up to the massive oxygen cylinder, we set off for the outing of her choice.
Now she was a bit of a cheap date!

Her favourite trips included :

*A fish and chip supper in the car park at Prestatyn Beach ( the car windows would always be full of coughed up mushy peas afterwards much to The Proff’s amusement)
*A drive up to Gwaenysgor Hillside
* or ( and most importantly) a trip to Sainsbury's car park! ( which is a supermarket for those that don't know)

At Sainsbury's I would set her up with a cigarette and a crossword (praying that a spark would not ignite the flammable Oxygen- now don't worry too much I WOULD always turn the O2 off when she lit up) and I would go into the store to purchase her weekly "treats" as she would sit quite happily in the passenger seat, waving as passers by like Princess Margaret 

These treats would always be the same

2 strawberry tarts ( with cream)
2-3 miniature bottles of gin
1 crossword book with pen
A selection of sweets ( to bribe the Nursing home staff so that they would take her for more fags during the day!)
A box of tissues
20 fags,

She was a crafty old cuss too, for every week after she  accepted her booty, she would suddenly "remember" some other item she had supposedly forgotten! 
I went along with this ruse....and would dutifully go and get her another miniature gin " for tomorrow night" she would say.........and as I did, she would enjoy one of her sneaky 50ml bottles of Gordons, before jamming the plastic bottle in the ash tray or down the air con vent flap!

It was nice to see my brother smiling at my memory....mind you, he would have told the story better if he could talk...he was always a better storyteller than I would ever be”

57 comments:

  1. Oh, John, this made me laugh and cry in equal measure. It touched a few nerves, too. But thank you. xx

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  2. What a day! Long and hard.
    When I'm older and more decrepit i will be eternally grateful if someone will take me out for a cake and a takeaway coffee.

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  3. A good story indeed. I can picture the scene in my head.

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    1. Think of my mother thus
      https://goldenglobes.com/person/anne-ramsey/

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  4. I can’t imagine that. The story tells so much and made me smile, too (and maybe grimace a little).

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    1. Yes, I was always overtired when I eventually got home , those days it was five hours driving

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  5. What was Princess Margaret doing being a passer-by in North Wales when she was already dead?

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  6. John, you are a lovely story teller; you bring me right into your memories.

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    1. She was a colourful character, writing about her is easy

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  7. Who will be our gin connection when we get old?

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  8. Anonymous12:19 pm

    I hope I die before I get to that stage. I’m ready to go now. Gigi

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    1. I hope I do too Gigi ….im sorry you are ready to go, but if that’s what you want …..
      You make Going Gently a more interesting place for being a commentator here x

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  9. Great story!!!! The ole stalwart was determined hell or high water she was getting her weekly stash! lol. Can you blame her on the gin? It's the nectar of the Gods!

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    1. She was an alcoholic for many years maddie xx

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  10. What a devoted son you were!

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    1. Oh Debra , no I wasn’t , not at all. I was the son that got away from home, the only one that lived his life 100 miles away from wales and the stressors that was my mother after my father died in 1989. She was a difficult woman , complex and demanding

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  11. Krayolakris1:59 pm

    You were so kind to allow your mother her guilty little pleasures. Inquiring Minds want to know…what is the image of your t-shirts in the photo?

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    1. Barbara Anne2:53 pm

      I was also going to ask about the matching tee shirts. Inquiring minds, you know!

      Hugs!

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    2. I think it was a photo of my brother , it may have been his birthday …he looked well so it may have been early in his motor neurone diagnosis

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  12. Anonymous2:43 pm

    What a nice memory. Glad you made your brother smile. Cali

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  13. Barbara Anne2:58 pm

    What a touching story and talk about going the extra mile - or 200 round trip, as is the case! You have always been one to do what is necessary to help your patients as much as possible and I remember your mum wasn't very kind as you were growing up so these trips weren't easy for you. AMIL would say you've earned stars for your crown for making those selfless trips!
    Would you please name who is who in the family photo? Ta!

    Hugs!

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    1. Left to right
      My brothers wife Jayne, twin sister Janet , me, my brother Andrew ( front) my brother in law tim, his wife my sister ann

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    2. Ta, John. I appreciate the introduction to your siblings and in-law. I know how much you miss Andrew even after all these years. Seeing his smile, I imagine your memories of him are good ones. I also believe that he is not far away. Hugs hugs!

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    3. Babs we were never close 🫩

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  14. Who could ask for a better son!

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    1. No Kate, for years I was the one that lived away and the responsibility for my mother was shouldered mainly by my elder sister ann and then janet)

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  15. Now that is quite a story. Your Mum was lucky to have you take her to her favorite places, buy treats and then manage all the medical paraphernalia along with complications. It is all very funny but also takes love, dedication and lots of humor on your part.
    I love the family photo.

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    1. I only took more responsibility when my sister ann who lived nearby could not cope anymore

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  16. I don't know what kind of relationship you had with your mum, but you did a good job caring for her, and a well told story:)
    For some reason I didn't realize you had brothers as well as sisters.
    I took my mum out for all her shopping. One day at the grocery story mum said, "I feel so awful that you have to take me shopping." I told her, "Well I don't want you feeling awful, I'll stop taking you shopping." and called her bluff. She said, "That's not what I meant."
    What she meant, is thank you for taking me shopping, I feel like a burden, and I'm sorry. And now I'm fucking crying!

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    1. My brother died in 2012 from motor neurone disease , there were four of us siblings ann, Andrew, me and Janet

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    2. Awwwww xx don’t cry

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  17. Jackie5:07 pm

    Another picture painted with your words

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  18. So long as she enjoyed her outings . . .

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    1. She did, but I only did this for a year or so, my sisters did it for years

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  19. From past posts you suggested that she was the less than a perfect mom. Gaging from the story and the picture I have to say that she produced some pretty wonderful children. XO

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    1. She wasn’t easy Katie , she had her demons and was probably depressed for many years, my sister ann kept us afloat when we were children , ( she was 13 when we were born , so was an adult when we needed her warmth and love)

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  20. Anonymous9:30 pm

    I hear your story but I recognise my own
    My mother was a Jewish “ Ima”
    Fury was her middle name

    Lee

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  21. When my mom was dying, se wanted to die at home. And despite all the family dysfunction, we made it possible for that to happen. You were a good son.

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    1. I had no guilt when she died , I manufactured that

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  22. Anonymous2:07 am

    John, I love the picture and love the story more. A lot of us have lived through that and from what I’ve seen, it’s usually the oldest daughter who has to handle things. It’s hard. You did a beautiful job and gave your sisters a break.Sending lots of love and giant hugs. Carol in Atlanta

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    1. Ann being the older sister had the big job

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  23. Humour and sadness together and I admire your sisters so much.

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  24. Was nice to read this, your care for your mother doesn't surprise me as you have such tolerance and kindness for your patients - she must have been a good mum and you gave her the best: love, respect and indulgence!

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  25. Just seen the weather forecast. Please take extra care in the predicted cold, frost and maybe snow 😘

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  26. I beautiful story. Reminds me to cherish my own mother who is living with Parkinsons. She does ok but it does scare me for the future. Thank you.

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