A Protocol for death

In hospital we now have a whole variety of "pathways" which outline a whole set of good practice steps which need to be followed to ensure the best medical and nursing care is given to our patients.
Today I had to implement the somewhat frightening sounding " end of life" pathway for the patient under my care, and I found it interesting to have to "tick a box" in a  set of protocol statements to ensure ( or prove) that I was providing the appropriate care to a dying patient.
Now don't get me wrong, these pathways are excellent tools for ensuring standardised quality care, but a little piece of me balked ever so slightly as I made sure the small pamphlet boxes were ticked after every hour passed by on my 13 hour shift..

Dealing with the dying patient is a skill a nurse should learn to develop very early in their careers. It is often a challenging and sometimes very upsetting experience that can be hugely satisfying when it has been done well and with thought and care and I am passionate that junior staff are supported and mentored in a supportive but no nonsense way in order to be able to deal sensitively with this the ultimate aspect of good nursing care.

"Pathway literature" , like I said, can be useful but they are, in my mind, just a guide to good practice. Excellent practice is only given when the nurse uses, those subtle personal skills of warmth , intuition and appropriate psychological skills  which make the difference. This is where feedback is vital. It is up to the senior nurse to reflect good practice and not only praise it but celebrate it when they see it in the clinical areas.
Unfortunately that doesn't always happen as much as I would like.....

Many years ago when I was a 21 year old nurse, I remember looking after a dying patient who had suffered from dementia for many years. He had no relatives, he had no friends, and I remember thinking that him dying alone, even though he had no idea of "self", was the most awful thing for anyone to go through.
As he was dying I remember taking my drink from the staff room on my break  and I sat with him as he passed away in the corner of a large asylum dormitory. I was not making a point or showing off...I did so as it just felt right to me....and I remember to this day the words of a gruff charge nurse called Johnny Crimes as I left duty for the day.  He said without any fuss " that was a good job today John!"
His acknowledgement of my work meant more to me than anything else...it taught me to accept and to follow my instincts...
that sort of comment is worth more than any protocol
It gives one a sense of validation

34 comments:

  1. no one leave any gushing comments please.,..it was not my intention to harvest any...
    I just think that proper mentoring is vital in all of the caring professions!

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  2. Anonymous9:59 pm

    Sounds like you are the kind of person we all need at the very end John.

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  3. No gushing, eh? Well, then, I'll just say "Good job, John."

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  4. Anonymous10:36 pm

    just hope the pig that is unfortunately not being named has you there at his side John.........when the big bacon slicer in the sky wields its blade......i am sure the thought of his lady (or whatever her name might be at that point), pining for him at the gate (with the ridiculously heavy chain i hasten to add), as he heads off towards the Waitrose Meat Counter in the sky will be so much more bearable as a result.......

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  5. anon
    no
    strange
    I can be at the bedside of patients when they die

    but when it is the pig....

    i cannot be there belive me!

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  6. John
    I totally know where you are coming from .......
    Jane

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  7. It takes all sorts to make a world.
    I knew a charge nurse who headed the emergency room in a large metropolitan hospital.
    No telling what gory sights she witnessed daily,calling the shots and making life-saving decisions in a moments notice.
    When it came to one of her pets becoming sick she completely fell apart. On one occasion I was giving her cat a transfusion and she fainted and fell on the floor of the exam room.
    To each their calling, I think you are a compassionate human being to both your fellow man, and all creatures great and small.
    No gushing either, just facts.
    We need more 'John the Dogs', in this world.
    ~Jo

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  8. Amen, John. Too often all any worker hears is when they've done wrong. I think if more heard when they did good - in any profession - that it would make a big difference in the work place.

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  9. Well, I was just going to say that because of young you, that old guy didn't have to die alone. And as Martha Steward would say, "That's a good thing!"

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  10. A good nurse is worth, well to someone who in their 20s saw way more of Dr.'s, nurse's and hospitals than they would have liked. A good nurse makes ALL the difference! :O)... Not gushing, stating facts.

    I am canning ketchup today, since you tried a jar LOL last year I thought I would let you know I have tweaked the recipe a bit. I think its better! :O)

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  11. I no longer tolerate cowardly comments as made by your anonymous contributor up there. Shame on 'anonymous', and that's all I'll say about them.

    I am now having positive second-thoughts about spinning off the M6 and ending up in the Wrexham area in intensive care on a curtailed trip to the Highlands - IF I have you around to see me through, John.

    I like the idea of you having a cuppa as I croak my last.

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  12. You are a good man, John. I wish all care givers had that kind of heart. Thank you.

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  13. Well done John Gray. Well done.
    It's a shame that our hospitals will invest more time to teach us how to DO the protocol than they will in helping us to BE the protocol.

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  14. It has been such along time that I have been able to read my favorite blogs and I can honestly say I have missed reading your posts. I so enjoy all the posts that you write and your life is such an adventure. Thanks for your kindness to your patients that you are in charge of daily . You are a good man.
    Have a Tiggeriffic Day~! ta ta for now from Iowa:)

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  15. I used to work in a care home for the elderly, where the dying were just left to get on with it. I couldn't do that. I had to sit with them and hold their hand, just so they knew that someone was there for them. I got the sack over that, the care home owner's policy being that one should do the house duties first and leave the patients to get on with dying. It was grim, that attitude, and it must be just as difficult for you having to be confined by 'pathways' although you sound strong enough to still follow your own intuition.

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  16. "Pathways." In the US over the years we have called them protocols, care paths, standards of care...the name changes but the action is the same. Compassion from one human to another. About 20 years ago I visited a hospice pt on my way home and shared a hefty shot of Jack Daniels with him. One of my most therapeutic visits ever. Of course there was no documentation to support this "Pathway"

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  17. I have huge respect for the nursing profession. Let's hope that all new guidelines encourage the best-practice that you so obviously perform.

    No gushing; honest!

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  18. Johnny Crimes was right. Good job. When I did my training aeons ago it was made clear to us almost from the very first day on the wards that no patient in our care should ever die alone.

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  19. Good on you mate!
    Giving a damn makes all the difference!

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  20. My friends mum died recently and she told me that the "End of Life" "facilitator" had introduced herself to her and her sister as they sat with their mum. Apparantly she breezed in and out every so often, and on occasion, they couldn't wait for her to leave the room so that they could have a giggle at her antics! When she presented them with 2 free meal vouchers for breakfast in the canteen, they felt as if they had won a raffle!xxx

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  21. Anonymous8:36 am

    john ,you are the best ever

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  22. diane
    end of life facilitator

    now THATS creepy

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  23. John,

    This has nothing to do with your most recent post, but I checked out your blog after you commented on a post of mine. I didn't see a way to contact you by email, so I'm taking the liberty of commenting here; pardon me. Weird coincidence: I noticed that the first film on your list of favorites is "All About Eve," and that the quote across your banner is from Margot Channing. Well, I just watched "All About Eve" for the first time last evening; how could I have missed it for so long?!

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  24. It was a difficult decision just one month ago to let me mother die. Checking those boxes and signing my name was the hardest thing that I've ever done.

    The hospice nurse was amazing. She was there from the beginning and even keeps in contact now, after.

    I work in the funeral buisness. But had never experienced the other side of it. I have to say that nurses make all the difference.

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  25. Great post, John. I'm not gushing (although I'd like to). But you're right about proper mentoring in ANY profession. What a difference it makes. (Oh, yeah, Good job, John!)

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  26. John - My hat is off to you. I am someone who cannot deal with death, not in pets, not in people. I am almost irrational about it, but I can't seem to get over it. Thank God that there are people like you, who counteract people like me in the world. :)

    Katie in MN

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  27. During these past 10 years, I have been at the side of quite a few (too many) family members and friends as they were dying. As difficult as those times were, the kindness, compassion and skill of the hospice nurse was a great comfort.

    Bless you John and bless all nurses who care so deeply.

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  28. Thank you for being the person you are... that's not gushing is it?

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  29. When my time comes, I do hope that buses will still be running to Beachy Head.

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  30. I don't care what the rest say John... you're a good guy. Good post.

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  31. Commendable post. Thank you for sharing. Nothing wrong with talking about how things should be and showing how to set the example. My Father passed away in his hospital bed, in peace. The nursing staff was nice enough, but I never go how "baffled" they seemed, when I insisted three hours before his death, that they stop drawing blood from his arm.

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  32. John, hats off to you and all of you in the nursing profession who remember that your patient is more than just a list of complaints. While a protocol can be helpful, there's more to helping the dying than marking off a box.

    When it's my time to go, i can only hope that someone who's as caring can be there with me as i leave this world.

    Hope that wasn't too gushing.

    megan

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  33. Anonymous6:48 am

    The nurse who owned the hospice I worked for once said that she could teach us all the practical skills, but the empathy--that intuitive knowing of who and when and what they need at any given moment--was innate. Either a person had it or they didn't. I think the boxes and pathways are an important reminder and discipline, as well as helpful perhaps for those without a lot of natural empathy. But they should only ever be an adjunct to the human-to-human contact and caring we all deserve in our last moments.
    Great post John...
    Dia
    PS Having said all that, the Jack Daniels pathway is one of the best! I'm right there with you Donna OShaughnessy!

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